Emotional Support & Healing
A DIPG diagnosis affects more than the child receiving treatment. It touches parents, siblings, grandparents, caregivers, and everyone who loves them.
Whether you're navigating the uncertainty of treatment, experiencing anticipatory grief, or learning to live after the loss of a child, your emotional well-being matters.
We've gathered resources to help families find understanding, connection, and compassionate support through every stage of this journey.
There is no right or wrong way to feel, and you don't have to carry it all alone.
Family & Caregivers
Caring for a child with DIPG can be emotionally and physically exhausting. Parents and caregivers often find themselves balancing medical decisions, daily responsibilities, uncertainty, and overwhelming emotions.
You deserve support, too.
Explore resources for emotional wellness, caregiver stress, counseling, and connecting with others who understand this journey.
Siblings & Children
When a child is diagnosed with DIPG, their siblings face a journey of their own. They may experience fear, confusion, sadness, jealousy, or changes in their everyday lives that are difficult to understand.
Children deserve a safe space to express their feelings, ask questions, and feel supported.
Explore age-appropriate counseling resources, creative activities, and tools to help siblings navigate difficult emotions and changes within their family.
Grief & Bereavement
The loss of a child changes a family forever. Grief doesn't follow a timeline, and there is no single way to navigate life after such a devastating loss.
Some days may bring moments of peace, while others feel impossibly heavy. Every emotion deserves compassion, understanding, and space.
Explore bereavement counseling, child-loss support communities, remembrance activities, and resources for families learning to carry both love and grief forward.
Your child's story matters. Their life matters. And they will never be forgotten.
Sometimes, having the right tool at the right moment can make an overwhelming day feel a little more manageable.
Our growing collection of printable resources is designed to help families navigate difficult emotions, stay organized during treatment, support siblings, and create meaningful memories together.
From practical checklists to creative activities, these resources are being developed with compassion, understanding, and the unique needs of DIPG families in mind.
Emotional Wellness
Feelings worksheets, journaling prompts, coping activities, and self-care tools.
Medical & Organizational
Appointment planners, medication logs, question lists, and record organizers.
Printable Resources & Family Tools
Children & Siblings
Coloring pages, emotion activities, conversation starters, and creative projects.
Memory & Legacy Activities
Memory books, keepsake activities, letters, and meaningful family projects.
Trusted Organizations & Support Networks
No single organization can meet every need a family faces during a DIPG journey. That's why connecting families with additional sources of support is such an important part of our mission.
We've brought together organizations dedicated to childhood brain cancer, family assistance, emotional support, and advancing research.
Whether you're searching for practical help, guidance, or a community that understands what you're facing, these organizations may offer another place to turn.
Together, we can make sure fewer families have to navigate this journey alone.
DIPG & Childhood Brain Cancer
Explore trusted organizations leading the fight against DIPG, diffuse midline glioma (DMG), and childhood brain tumors. These resources connect families with groundbreaking research, clinical trials, emerging treatment options, medical guidance, and advocacy efforts working toward a cure.
ChadTough Defeat DIPG Foundation
Dedicated to funding research, raising awareness, and supporting families affected by DIPG and other pediatric brain tumors. ChadTough works to advance research toward better treatments and, ultimately, a cure.
DIPG Nurse Navigator
A free navigation and support resource for families facing a DIPG diagnosis. My DIPG Navigator helps families understand their options, access educational information, explore clinical trials, and connect with experienced nurse navigators who can provide personalized guidance throughout their child's journey.
Tough2Gether
A nonprofit organization dedicated to bringing families, researchers, and advocates together in the fight against DIPG and DMG. Tough2Gether supports collaborative research, raises awareness, and helps connect families with information, resources, and a community that understands their journey.
The Cure Starts Now Foundation
The Cure Starts Now is a nonprofit organization dedicated to funding research into pediatric brain cancers, with a particular focus on DIPG and other aggressive brain tumors. Through research partnerships, fundraising, and advocacy, the foundation works to accelerate scientific discoveries and advance the search for more effective treatments and a cure.
National Cancer Institute (NCI)
The National Cancer Institute is the federal government's leading agency for cancer research. Its website provides reliable, research-based information about DIPG and other childhood brain tumors, including diagnosis, treatment approaches, clinical trials, and ongoing research. An important resource for families seeking trustworthy medical information.
Pediatric Brain Tumor Foundation
The Pediatric Brain Tumor Foundation supports children and families affected by pediatric brain tumors through educational resources, family support programs, financial assistance, and research funding. The organization helps families navigate the challenges of diagnosis, treatment, survivorship, and bereavement while working toward better outcomes for children.
International DIPG/DMG Registry
The International DIPG/DMG Registry is a collaborative research initiative dedicated to improving the understanding and treatment of DIPG and diffuse midline glioma (DMG). By collecting and studying patient medical records, imaging, and tumor information, researchers work to identify disease patterns, advance scientific discoveries, and support the development of more effective treatments. Families can also explore opportunities to contribute to research and request expert review of medical information.
DIPG/DMG Collaborative
The DIPG/DMG Collaborative brings together foundations and advocates committed to accelerating research into diffuse intrinsic pontine glioma (DIPG) and diffuse midline glioma (DMG). By pooling resources and funding collaborative research projects, the organization supports scientific discoveries, innovative treatment approaches, and progress toward finding a cure for these devastating childhood brain tumors.
Pediatric Neuro-Oncology Consortium (PNOC)
The Pediatric Neuro-Oncology Consortium (PNOC) is a collaborative network of leading medical institutions and researchers dedicated to developing innovative treatments for children and young adults with brain tumors. Through clinical trials and specialized research initiatives, PNOC investigates promising therapies for DIPG, DMG, and other pediatric brain cancers, working to improve treatment options and outcomes for patients.
Cure Brain Cancer Foundation
Cure Brain Cancer Foundation is an Australian nonprofit organization dedicated to accelerating brain cancer research and improving treatment outcomes. Through research funding, scientific collaboration, and clinical research initiatives, the foundation supports the development of innovative therapies for adult and pediatric brain tumors, including diffuse midline glioma (DMG) and DIPG. Its mission is to advance discoveries that bring researchers closer to more effective treatments and, ultimately, a cure.
Children's Brain Tumor Network (CBTN)
The Children's Brain Tumor Network is a global research initiative dedicated to accelerating discoveries and improving treatments for pediatric brain tumors, including DIPG and diffuse midline glioma (DMG). By connecting researchers with tumor samples, genetic information, medical imaging, and clinical data, CBTN supports scientific collaboration and the development of more effective, targeted therapies for children with brain cancer.
DIPG/DMG Research Funding Alliance (DDRFA)
The DIPG/DMG Research Funding Alliance brings together nonprofit foundations and families committed to accelerating research and treatment advancements for DIPG and diffuse midline glioma (DMG). Through collaborative funding, the alliance supports innovative research, clinical trial access, and the sharing of critical medical data to help researchers develop more effective treatments and work toward a cure.
Family & Financial Assistance
Pinky Swear Foundation provides financial and practical support to families navigating a childhood cancer diagnosis. Through programs offering assistance with housing, utilities, groceries, and transportation, the foundation helps ease everyday financial burdens so families can focus on caring for their child. Support is available to eligible families through its financial assistance programs.
Founded in loving memory of Noah Evans, the NoahBRAVE Foundation provides personalized financial and emotional support to families facing DIPG, DMG, and other life-threatening pediatric brain tumors. Through assistance with housing, groceries, utilities, medical expenses, and treatment-related travel, the foundation helps ease everyday burdens while also supporting research and families experiencing bereavement.
A childhood cancer diagnosis affects far more than a child's health. It can place an overwhelming financial and emotional burden on the entire family. From household expenses and transportation to meals and temporary lodging, everyday needs don't stop when treatment begins.
The organizations below offer financial assistance, practical resources, and compassionate support to help families navigate these challenges. Because no family should have to choose between caring for their child and keeping their household afloat. Please click the logo to be taken to their site.
Family Reach is a national nonprofit organization dedicated to reducing the financial hardships associated with a cancer diagnosis. Through financial assistance programs, personalized resource navigation, and educational tools, Family Reach helps patients and families address essential needs such as housing, utilities, groceries, and transportation. Its mission is to ease financial stress so families can focus on treatment and caring for their loved ones.
Memories and Magical Moments is a nonprofit organization dedicated to supporting children and families affected by DIPG and pediatric cancer. Through meaningful experiences, memory-making opportunities, and financial and emotional assistance, the organization helps families create treasured moments together while navigating the challenges of a childhood cancer diagnosis.
The Tyler Robinson Foundation provides financial and emotional support to families affected by childhood cancer. Through its family assistance programs, the foundation helps eligible families manage everyday living expenses and financial hardships associated with a child's cancer treatment, allowing parents to focus more fully on their child's care and well-being.
Princess Hailey's Hope Foundation
Founded in loving memory of Hailey Acevedo, Princess Hailey's Hope Foundation supports children and families affected by DIPG and diffuse midline glioma (DMG). Through its Hugs from Hailey program, the foundation provides personalized care packages and special gifts to children across the United States. Its Hops from Hailey program offers transportation assistance for eligible families traveling to clinical trials or expanded access treatments. The foundation also funds pediatric brain cancer research and helps connect families with expert medical guidance.
The InVINCEable Foundation is dedicated to easing the financial and emotional burdens families face during childhood cancer treatment. Through direct financial assistance, the foundation helps families manage essential household expenses, such as mortgage and car payments, while also offering encouragement and emotional support. Its mission is to help parents focus less on financial stress and more on caring for their children during an incredibly challenging journey.
Derail Childhood Cancer Foundation
Derail Childhood Cancer Foundation is a nonprofit organization dedicated to supporting children and families facing childhood cancer. Through programs such as Hope Express Packs and Birthdays on Board, the foundation works to provide practical hospital essentials, comforting resources, and personalized birthday celebrations for pediatric cancer patients. The organization also advocates for childhood cancer awareness and plans to support research toward better treatments and cures.
Created in honor of Paige, PB&J Spreading Love provides financial assistance to families whose children have been diagnosed with DIPG or are receiving hospice or palliative end-of-life care. Built on the belief that no family should have to fight alone, the organization helps ease financial burdens during some of the most difficult moments a family can face, allowing parents to focus on spending precious time with their children.
Created in honor of Gunner Craig Smith, the All Heart Gunner Foundation provides financial assistance, encouragement, and compassionate support to families facing pediatric brain cancer. Understanding the overwhelming challenges that accompany a child's diagnosis, the foundation helps ease financial burdens so parents can focus on their child's care and precious time together. Guided by Gunner's courageous “All Heart” spirit, the foundation reminds families that no child should ever have to fight alone.
Practical Family Tools
When your child is diagnosed with DIPG, everyday life doesn't stop. Appointments, medications, school, work, household responsibilities, and family needs can quickly become overwhelming.
Sometimes, the most helpful support comes from knowing what to do next, what questions to ask, and how to organize the people and resources around you.
We've created this space to share practical guidance that can help families navigate daily challenges, prepare for important conversations, and feel a little more supported along the way.
You don't have to have every answer. You just need a place to start.
Managing Everyday
Life
Balancing household responsibilities, school, work, and family needs during treatment.
Questions Worth
Asking
Helpful conversation guides for medical appointments, care planning, and family decisions.
Navigating Medical Care
Understanding care coordination, preparing for appointments, and communicating with medical teams.
Building Your Support Network
Organizing meals, transportation, childcare, and help from friends and family.